I can now laugh again and have almost zero thoughts of suicide
I have been diagnosed with PPPD (Persistent Postural-Perceptual Dizziness), PTSD, high blood pressure, Diabetes Type 2, and high LDL and triglycerides. I have lived with migraines and severe dizziness 24/7 since 2011 and have suffered from the migraines as long as 2005. I was prescribed twelve different antidepressants and antipsychotics and they all made me extremely suicidal and depressed. I was out of ideas and was ready to call it quits. My doctor, neurologist, and two psychiatrists recommended I check out CBD oil for help. I started doing research and about 2 months went by before I contacted Realm of Caring. They were very friendly and helpful through the entire process.
After about 2 months on the CBD oil, I began to realize that my horrible thoughts were going away. I have been on CBD since July and can now laugh again and have almost zero thoughts of suicide anymore. For someone who lived with these thoughts every single day of his life this is a wonderful change. My blood pressure checks out perfect every time I visit the doctor now. My blood sugars are easier to control. The only things left that I struggle with are the high LDL/triglycerides and the dizziness, which is extremely bad, but that’s MUCH better than where I was just a few months ago. It’s been worth it to me and my family and friends. I’m so glad that I decided to give this a try!
So I’ve been suffering with constant non-spinning vertigo for the better part of 10 years now and I’m really tired and struggling with it. Everyday it’s the same dread of feeling like I’m on a boat accompanied by extreme anxiety and moderate depression.
I would love to chat to some anyone suffering with a similar situation. I know there isn’t a ‘cure’ but if anyone has any suggestions or advice it would be much appreciated.
I saw an ENT and he prescribed me diazpam for the dizziness. I don't take it a lot, only if I'm away from home but it does help. Have you tried doing physical therapy for it?
Hi there, thank you for the reply!
I haven’t actually, in all this time that I’ve had it, seen a specialist. I’ve been to my GP multiple times about it but he just suggests it’s Meneires disease which I don’t think is correct. I would love to do physical/vestibular therapy for it, do you know how effective it is?
Does the Diazpam work for you?
My ENT suspects I may have PPPD.
Hope you don't mind the long response, I've been looking for forums to hear from others struggling with the same issue. Started out with this odd feeling of bobbing/rocking/swaying while working in front of my computer around the time restrictions were hitting countries at the beginning of the COVID pandemic this year (around April/May for me).
Eventually, after brain/C-spine MRIs, ECG/EKG, carotid ultrasounds and countless blood tests (all normal), my ENT finally sent me for vestibular testing in August which showed "superior vestibular nerve/utricle dysfunction". My ENT says it was probably due to a viral cause, but I wasn't sick at all this year, so I'd personally still classify my vestibular disorder as "idiopathic".
After all my testing, which mostly put my mind at ease, it gradually became less noticeable (in Sep/Oct 2020) and I thought it was totally gone.
Then my partner was told in Oct/Nov that she might lose her job due to COVID, which was super stressful for us, and this stress seemed to culminate in me having a panic attack.
Within the next few days, the bobbing/rocking/swaying started up again and has actually gotten worse than the first time round. I also have this weird phenomenon where, when lying down, if I move an arm or leg or my head just slightly (even with my eyes closed) it suddenly feels like I'm falling.
Currently undergoing CBT and vestibular rehab, but with limited success. Gaze stability exercises seem to help somewhat though because my vestibulo-ocular reflex seems dysfunctional (moving my head quickly seems to trigger my symptoms, and this seems to be because my eyes are out of sync).
The insights I got from this BMJ article seem to be helping the most right now. Especially Figure 2. I'm an introvert, have a tendency towards anxiety and tend to introspect a lot. I also seem to have obsessive-compulsive tendencies when it comes to health issues. Apparently I'm a perfect candidate for cultivating PPPD 🙁
According to the current understanding of PPPD, when you're anxious about your symptoms it actually reinforces and strengthens the pathways in your brain that give you the rocking/bobbing/swaying feelings. This is apparently why the doctors prescribe antidepressants, to basically interrupt those pathways that reinforce the sensations. Meditation, and specifically practising acceptance of the symptoms without giving in to anxiety, seems to help me somewhat. Meditating while listening to these Sacred Acoustics meditations (the non-verbal ones) seems to reduce my symptoms for a while (I have no affiliation to them and don't earn anything from that link).
I'm also currently looking into non-invasive vagus nerve stimulation techniques, since this study claims that PPPD patients had success in managing their symptoms through that. Seems like there are devices available for vagus nerve stimulation through the skin in your neck (since your vagus nerve runs down along either side of your neck next to your carotid artery/jugular vein), but I can't figure out how to buy one where I live, so I just ordered a few electronic components to build something similar to what these researchers have built for vagus nerve stimulation through vibration/noise applied to a specific point on your ear that's apparently linked to your vagus nerve. Of course, the researchers built that vibrating pen device to help people with rheumatoid arthritis, but it's the vagus nerve stimulation I'm interested in. If it happens to reduce other systemic inflammation too, then great. I can report back on this if anyone's interested.
Finally, I'm also taking about 10-20mg of CBD oil every day (I live in Canada, so it seems easy to get CBD oil with reliable CBD/THC quantities). I'm trying this out instead of the Venlafaxine my ENT prescribed because I'm not comfortable with the potential side effects of the Venlafaxine (it's a last resort for me right now).
So far, with the above approaches, I think I've managed to reduce my subjective experience of my symptoms by about 30-40% so far over the past few weeks. Hopefully I can retrain my brain to reduce my symptoms 100%, but apparently that process can take months of concerted effort.